Gentherapie: 80% Haut erfolgreich transplantiert und damit Hoffnung für die „Schmetterlingskinder“
Nun ist es offiziell: die Pressekonferenz zu den Ergebnissen der Hauttransplantation des „Schmetterlingskindes“ Hassan, der nun dank der Gentherapie lebt. Wir von DEBRA Südtirol sind gerührt von der Großartigkeit dieser Ergebnisse und danken den Teams von Prof. Michele De Luca und von Prof. Johann Bauer und der Familie von Hassan. Ihr schenkt uns Hoffnung – greifbare Hoffnung!
Der Standard:
Schmetterlingskind erhielt großflächig neue genkorrigierte Haut
http://derstandard.at/2000067434118/Schmetterlingskind-erhielt-grossflaechig-neue-genkorrigierte-Haut?ref=article
ORF:
Studiogespräch mit DEBRA Austria-Obmann
http://tvthek.orf.at/profile/Mittag-in-Oesterreich/13887636/Mittag-in-Oesterreich/13952561/Studiogespraech-mit-DEBRA-Austria-Obmann/14171290
Science ORF:
Schmetterlingskind erhält 80 Prozent neue Haut
http://science.orf.at/stories/2876887/
ZIB ORF:
Schmetterlingskind geheilt
http://tvthek.orf.at/profile/ZIB-1/1203/ZIB-1/13952427/Schmetterlingskind-geheilt/14170781
Die Zeit:
Gezüchtete Haut rettet Siebenjährigen
http://www.zeit.de/wissen/gesundheit/2017-11/stammzellen-gentherapie-hautkrankheit-epidermolysis-bullosa?wt_zmc=sm.ext.zonaudev.facebook.ref.zeitde.share.link.x&utm_medium=sm&utm_source=facebook_zonaudev_ext&utm_campaign=ref&utm_content=zeitde_share_link_x
Der Spiegel:
Todkranker Junge erhält neue Haut
http://www.spiegel.de/gesundheit/diagnose/gentherapie-junge-erhaelt-neue-haut-a-1177073.html
Stol.it:
Neue Hoffnung für Schmetterlingskinder
https://www.stol.it/Artikel/Chronik-im-Ueberblick/Chronik/Neue-Hoffnung-fuer-Schmetterlingskinder
SRF:
Heilung in Aussicht für «Schmetterlingskinder»
https://www.srf.ch/play/radio/rendez-vous/audio/heilung-in-aussicht-fuer-schmetterlingskinder?id=a2a4f8e0-b616-4971-bc68-56a3e9b1ffaf&station=69e8ac16-4327-4af4-b873-fd5cd6e895a7
20 Min:
Forscher ersetzen fast die ganze Haut eines Kindes
http://www.20min.ch/wissen/gesundheit/story/30745818
La Repubblica:
Nuova pelle con le staminali a un 'bimbo farfalla': medici di Modena gli salvano la vita. E lui torna a scuola
http://www.repubblica.it/salute/2017/11/08/news/nuova_pelle_con_le_staminali_medici_italiani_salvano_la_vita_a_un_bambino-180577319/
Rai TG1:
Pelle sintetica
http://www.rai.it/dl/RaiTV/programmi/media/ContentItem-95ac3c18-cb1e-44ea-9bf8-cedd303633be-tg1.html
TGCOM 24:
Pelle rigenerata salva il "bambino farfalla": una ricerca italiana identifica la fonte che rinnova le cellule
http://www.tgcom24.mediaset.it/salute/pelle-rigenerata-salva-il-bambino-farfalla-una-ricerca-italiana-identifica-la-fonte-che-rinnova-le-cellule_3105354-201702a.shtml
Il fatto quotidiano:
Ricerca, team italiano salva un “bambino farfalla”: pelle geneticamente modificata al posto di quella malata
http://www.ilfattoquotidiano.it/2017/11/08/ricerca-team-italiano-salva-un-bambino-farfalla-trapiantato-l80-della-pelle-malata/3967223/
Quotidiano.net:
Bambino farfalla, cos'è l'epidermolisi bollosa. Sintomi e malattia
http://www.quotidiano.net/cronaca/bambino-farfalla-malattia-1.3520655
Le Scienze:
Una nuova pelle transgenica per il bambino farfalla
http://www.lescienze.it/news/2017/11/08/news/epidermolisi_bollosa_terapia_genica_de_luca-3747260/
Il resto del Carlino:
Bambino farfalla, pelle geneticamente modificata a Modena salva la vita di Hassan
http://www.ilrestodelcarlino.it/modena/cronaca/bambino-farfalla-1.3520657
Adnkronos:
Pelle nuova col gene sano, Italia salva il piccolo Hassan
http://www.adnkronos.com/salute/medicina/2017/11/08/pelle-nuova-col-gene-sano-italia-salva-piccolo-hassan_iIvW7uPmDaWeG2x4gf3B6I.html?refresh_ce
Healthdesk:
Nella pelle di Hassan, il bambino siriano vivo grazie alle staminali italiane
http://www.healthdesk.it/ricerca/pelle-hassan-bambino-siriano-vivo-grazie-staminali-italiane
New York Times:
Gene Therapy Creates New Skin to Save a Dying Child
https://www.nytimes.com/2017/11/08/health/gene-therapy-skin-graft.html
Time:
Scientists Grew Totally New Skin for a 7-Year-Old Boy and Saved His Life
http://time.com/5015938/skin-stem-cell-therapy/
BBC:
Butterfly child' given life-saving skin
http://www.bbc.com/news/health-41914101
The Atlantic:
A Dying Boy Gets a New, Gene-Corrected Skin
https://www.theatlantic.com/science/archive/2017/11/epidermolysis-bullosa-new-skin/545291/
The Wall Street Journal:
New Skin for 7-Year-Old Boy Marks Advance in Gene Therapy
https://www.wsj.com/articles/new-skin-for-7-year-old-boy-marks-advance-in-gene-therapy-1510164025
LA Times:
9-year-old boy with rare disease now has engineered skin covering 80% of his body
http://www.latimes.com/science/sciencenow/la-sci-sn-engineered-skin-epidermis-20171108-story.html
DailyMail Online:
'Butterfly' boy, seven, who lost 80% of his skin and should have DIED is saved by scientists who created a pioneering new skin for him
http://www.dailymail.co.uk/health/article-5062655/Breakthrough-butterfly-boy-seven-saved.html
Att Net:
Boy With Rare Disease Gets Brand New Skin With Gene Therapy
http://start.att.net/news/read/category/news/article/the_associated_press-boy_with_rare_disease_gets_brand_new_skin_with_gen-ap
WIRED:
Scientists save a kid by growing a whole new skin for him
https://www.wired.com/story/scientists-save-a-kid-by-growing-a-whole-new-skin-for-him/
Sciencemag:
A boy with a rare disease gets new skin, thanks to gene-corrected stem cells
http://www.sciencemag.org/news/2017/11/boy-rare-disease-gets-new-skin-thanks-gene-corrected-stem-cells
Technology Review:
Gene-Therapy Grafts Have Repaired a Child’s Devastating Skin Disorder
https://www.technologyreview.com/s/609380/gene-therapy-grafts-have-repaired-a-childs-devastating-skin-disorder/
New Scientist:
Boy with a genetic disease has had almost all his skin replaced
https://www.newscientist.com/article/mg23631514-400-boy-with-a-genetic-disease-has-had-almost-all-his-skin-replaced/
Channel New Asia:
Gene therapy saves boy's skin and life
http://www.channelnewsasia.com/news/health/gene-therapy-saves-boy-s-skin-and-life-9388966
The Nature:
Regeneration of the entire human epidermis using transgenic stem cells
https://www.nature.com/articles/nature24487.epdf?referrer_access_token=HYUFbDA2h8F8qGvQ38smFNRgN0jAjWel9jnR3ZoTv0OSWviL8WF5ZttJjAsMRX_zHxS-eQNjkE7AlrtNr3d7gloCoBP7WGiwXVdby4cH_RRadWB0-6FMJ_WOkS-53RmOJmPYCisX5u_Y5r7slYYuBrmKNTGA-xYSbYyOz44YQc4jrtA3k4NGGXf7fc2lhO2i-k-KZsDcH3O4ueXy6I0DqOrax1HaD44dvSftc2FmYWmT2wi4bzg1I9KxBWzHjw-tzxcyrb-zY1RMDrlIaRQJ_nXAHsUsWmI4_GOACiDA1EY%3D&tracking_referrer=www.lescienze.it