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Gentherapie: neue Ergebnisse neue Hoffnung

Gentherapie: 80% Haut erfolgreich transplantiert und damit Hoffnung für die „Schmetterlingskinder“

Nun ist es offiziell: die Pressekonferenz zu den Ergebnissen der Hauttransplantation des „Schmetterlingskindes“ Hassan, der nun dank der Gentherapie lebt. Wir von DEBRA Südtirol sind gerührt von der Großartigkeit dieser Ergebnisse und danken den Teams von Prof. Michele De Luca und von Prof. Johann Bauer und der Familie von Hassan. Ihr schenkt uns Hoffnung – greifbare Hoffnung!

Hassan Fussball

Der Standard:

Schmetterlingskind erhielt großflächig neue genkorrigierte Haut

http://derstandard.at/2000067434118/Schmetterlingskind-erhielt-grossflaechig-neue-genkorrigierte-Haut?ref=article

 

ORF:

Studiogespräch mit DEBRA Austria-Obmann

http://tvthek.orf.at/profile/Mittag-in-Oesterreich/13887636/Mittag-in-Oesterreich/13952561/Studiogespraech-mit-DEBRA-Austria-Obmann/14171290

 

Science ORF:

Schmetterlingskind erhält 80 Prozent neue Haut

http://science.orf.at/stories/2876887/

 

ZIB ORF:

Schmetterlingskind geheilt

http://tvthek.orf.at/profile/ZIB-1/1203/ZIB-1/13952427/Schmetterlingskind-geheilt/14170781

 

Die Zeit:

Gezüchtete Haut rettet Siebenjährigen

http://www.zeit.de/wissen/gesundheit/2017-11/stammzellen-gentherapie-hautkrankheit-epidermolysis-bullosa?wt_zmc=sm.ext.zonaudev.facebook.ref.zeitde.share.link.x&utm_medium=sm&utm_source=facebook_zonaudev_ext&utm_campaign=ref&utm_content=zeitde_share_link_x

 

Der Spiegel:

Todkranker Junge erhält neue Haut

http://www.spiegel.de/gesundheit/diagnose/gentherapie-junge-erhaelt-neue-haut-a-1177073.html

 

Stol.it:

Neue Hoffnung für Schmetterlingskinder

https://www.stol.it/Artikel/Chronik-im-Ueberblick/Chronik/Neue-Hoffnung-fuer-Schmetterlingskinder

 

SRF:

Heilung in Aussicht für «Schmetterlingskinder»

https://www.srf.ch/play/radio/rendez-vous/audio/heilung-in-aussicht-fuer-schmetterlingskinder?id=a2a4f8e0-b616-4971-bc68-56a3e9b1ffaf&station=69e8ac16-4327-4af4-b873-fd5cd6e895a7

 

20 Min:

Forscher ersetzen fast die ganze Haut eines Kindes

http://www.20min.ch/wissen/gesundheit/story/30745818

 

La Repubblica:

Nuova pelle con le staminali a un 'bimbo farfalla': medici di Modena gli salvano la vita. E lui torna a scuola

http://www.repubblica.it/salute/2017/11/08/news/nuova_pelle_con_le_staminali_medici_italiani_salvano_la_vita_a_un_bambino-180577319/

 

Rai TG1:

Pelle sintetica

http://www.rai.it/dl/RaiTV/programmi/media/ContentItem-95ac3c18-cb1e-44ea-9bf8-cedd303633be-tg1.html

 

TGCOM 24:

Pelle rigenerata salva il "bambino farfalla": una ricerca italiana identifica la fonte che rinnova le cellule

http://www.tgcom24.mediaset.it/salute/pelle-rigenerata-salva-il-bambino-farfalla-una-ricerca-italiana-identifica-la-fonte-che-rinnova-le-cellule_3105354-201702a.shtml

 

Il fatto quotidiano:

Ricerca, team italiano salva un “bambino farfalla”: pelle geneticamente modificata al posto di quella malata

http://www.ilfattoquotidiano.it/2017/11/08/ricerca-team-italiano-salva-un-bambino-farfalla-trapiantato-l80-della-pelle-malata/3967223/

 

Quotidiano.net:

Bambino farfalla, cos'è l'epidermolisi bollosa. Sintomi e malattia

http://www.quotidiano.net/cronaca/bambino-farfalla-malattia-1.3520655

 

Le Scienze:

Una nuova pelle transgenica per il bambino farfalla

http://www.lescienze.it/news/2017/11/08/news/epidermolisi_bollosa_terapia_genica_de_luca-3747260/

 

Il resto del Carlino:

Bambino farfalla, pelle geneticamente modificata a Modena salva la vita di Hassan

http://www.ilrestodelcarlino.it/modena/cronaca/bambino-farfalla-1.3520657

 

Adnkronos:

Pelle nuova col gene sano, Italia salva il piccolo Hassan

http://www.adnkronos.com/salute/medicina/2017/11/08/pelle-nuova-col-gene-sano-italia-salva-piccolo-hassan_iIvW7uPmDaWeG2x4gf3B6I.html?refresh_ce

 

Healthdesk:

Nella pelle di Hassan, il bambino siriano vivo grazie alle staminali italiane

http://www.healthdesk.it/ricerca/pelle-hassan-bambino-siriano-vivo-grazie-staminali-italiane

 

New York Times:

Gene Therapy Creates New Skin to Save a Dying Child

https://www.nytimes.com/2017/11/08/health/gene-therapy-skin-graft.html

 

Time:

Scientists Grew Totally New Skin for a 7-Year-Old Boy and Saved His Life

http://time.com/5015938/skin-stem-cell-therapy/

 

BBC:

Butterfly child' given life-saving skin

http://www.bbc.com/news/health-41914101

 

The Atlantic:

A Dying Boy Gets a New, Gene-Corrected Skin

https://www.theatlantic.com/science/archive/2017/11/epidermolysis-bullosa-new-skin/545291/

 

The Wall Street Journal:

New Skin for 7-Year-Old Boy Marks Advance in Gene Therapy

https://www.wsj.com/articles/new-skin-for-7-year-old-boy-marks-advance-in-gene-therapy-1510164025

 

LA Times:

9-year-old boy with rare disease now has engineered skin covering 80% of his body

http://www.latimes.com/science/sciencenow/la-sci-sn-engineered-skin-epidermis-20171108-story.html

 

DailyMail Online:

'Butterfly' boy, seven, who lost 80% of his skin and should have DIED is saved by scientists who created a pioneering new skin for him

http://www.dailymail.co.uk/health/article-5062655/Breakthrough-butterfly-boy-seven-saved.html

 

Att Net:

Boy With Rare Disease Gets Brand New Skin With Gene Therapy

http://start.att.net/news/read/category/news/article/the_associated_press-boy_with_rare_disease_gets_brand_new_skin_with_gen-ap

 

WIRED:

Scientists save a kid by growing a whole new skin for him

https://www.wired.com/story/scientists-save-a-kid-by-growing-a-whole-new-skin-for-him/

 

Sciencemag:

A boy with a rare disease gets new skin, thanks to gene-corrected stem cells

http://www.sciencemag.org/news/2017/11/boy-rare-disease-gets-new-skin-thanks-gene-corrected-stem-cells

 

Technology Review:

Gene-Therapy Grafts Have Repaired a Child’s Devastating Skin Disorder

https://www.technologyreview.com/s/609380/gene-therapy-grafts-have-repaired-a-childs-devastating-skin-disorder/

 

New Scientist:

Boy with a genetic disease has had almost all his skin replaced

https://www.newscientist.com/article/mg23631514-400-boy-with-a-genetic-disease-has-had-almost-all-his-skin-replaced/

 

Channel New Asia:

Gene therapy saves boy's skin and life

http://www.channelnewsasia.com/news/health/gene-therapy-saves-boy-s-skin-and-life-9388966

 

The Nature:

Regeneration of the entire human epidermis using transgenic stem cells

https://www.nature.com/articles/nature24487.epdf?referrer_access_token=HYUFbDA2h8F8qGvQ38smFNRgN0jAjWel9jnR3ZoTv0OSWviL8WF5ZttJjAsMRX_zHxS-eQNjkE7AlrtNr3d7gloCoBP7WGiwXVdby4cH_RRadWB0-6FMJ_WOkS-53RmOJmPYCisX5u_Y5r7slYYuBrmKNTGA-xYSbYyOz44YQc4jrtA3k4NGGXf7fc2lhO2i-k-KZsDcH3O4ueXy6I0DqOrax1HaD44dvSftc2FmYWmT2wi4bzg1I9KxBWzHjw-tzxcyrb-zY1RMDrlIaRQJ_nXAHsUsWmI4_GOACiDA1EY%3D&tracking_referrer=www.lescienze.it